Hello Dear Friends…
Today, I hope that we appreciate the time we are given,
that we do not take for granted the blessings we have,
and the people we love ❤
The 18th of September, 2014, dawned bright & beautiful.
For J & F, it was the day their dreams came true.
After a textbook pregnancy… sweet baby Violet was born.
During the first few months of her life, Violet developed as expected.
She was strong, alert & vocal, she smiled & laughed…
On the evening of December 15, 2014, just 3 days before turning 3 months old,
Violet began having ‘attacks’.
She would curl her back and bring her knees up, obviously in distress.
The ER doctor, along with other doctors, diagnosed her with Colic.
The ‘attacks’ persisted, and none of the ‘gas’ remedies seemed to be working.
Late one night, Violet’s frustrated Mama did a search on the internet
for tips & tricks to relieve colic and clicked on a video that caught her attention.
Chills went down her spine when she realized that this video was
describing Violet’s symptoms and the diagnosis was something
they hadn’t even considered before…
They took Violet to the ER and refused to go home
until someone finally listened.
When they showed the video to the doctor, she recognized right away
that Violet was in trouble and determined that she was having
Infantile Spasms (aka West Syndrome), a rare and severe form of epilepsy.
The next day, after extensive testing, it was discovered that
Violet had a rare brain malformation called Lissencephaly.
This beautiful family had their whole world turned upside down…
Vy began medications to attempt to control her spasms,
but new seizure activity appeared and she was
unable to breathe or swallow on her own.
She was airlifted to Calgary, to the Alberta Children’s Hospital.
Once there, she began to respond to the medications
and she was able to come home to Lethbridge again…
J & F knew that they wanted Violet to experience as
much of this amazing world as she could, and so… they travelled…
all across Canada, the United States,
the Caribbean and they even took Violet to Disneyland!
The doctors said that her condition was severe,
that her epilepsy was medication resistant,
and after trying all the possible combinations of medication,
Violet was diagnosed as palliative.
They decided to ease up on the heavy medication, and surprisingly,
her seizures became more manageable and less severe,
instead of the constant huge seizures that would regularly put her in a coma.
Violet was a legal medical marijuana patient,
she relied on it to help relax her muscles,
encourage a more restful sleep,
improve her appetite and overall comfort level…
Her parents firmly believe that medical marijuana is the
reason she was able to find some measure of enjoyment in her little life…
It was just before her first birthday that I met Violet.
She was a beautiful little princess who
won my heart at first glance.
She totally rocked her session,
in a special tutu and pearls
that her Daddy bought especially for her.
The strength, patience and peace that I felt in their home
was truly inspiring, and this family will always
have a special place in my heart ❤
Violet reached milestones that the doctors never thought she would;
she was able to express herself with cries & noises,
she grew to be over 3 feet tall,
she had long beautiful curls, perfect caramel skin,
and the biggest brown eyes that you ever saw.
For 19 months, she captured the hearts of everyone who knew her.
Sadly, on April 18, 2016, Violet passed away.
In spite of the struggles she went through in her little life,
with all the ups & downs…
Violet inspired her friends & family
to be stronger & love harder
Thank you so much for visiting my blog,
please feel free to show some love
& leave some encouragement for this family,
I’m sure it will be greatly appreciated!